Naomi Age 13
...As the father of a daughter myself, seeing Naomi struggle brings a real visceral feeling to me…
Southborough, MA (PRWEB) March 24, 2014
Guardian Angel Motorsports' (GAM) driver Chris Outzen will be hitting the pavement of St. Petersburg at the Firestone Grand Prix March 28th-30th in his first charity ride of the season. Chris will be racing for GAM to help raise the necessary funds for a critical communication device to help one of our special GAM kids.
The little girl has no method of communication and the device will dramatically change her world and everyone around her. "As the father of a daughter myself, seeing Naomi struggle brings a real visceral feeling to me," says Outzen, "I'm looking forward to joining the Guardian Angel effort to make a difference for her."
Naomi is a 13 year old girl with Rett Syndrome. She enjoys many activities like bowling attending after school art classes just to name a few. Rett syndrome robs girls of a normal life. She is 100 percent dependent on her mom and dad. She can not feed, dress, toilet herself or speak.
GAM was introduced In March of 2012 when she got very sick. Her parents took her to the local hospital and found that the ear infection was causing her liver and kidneys to shut down they immediately sent her to Children's Hospital Boston were the ER crew worked on her for over 20 hours. She then went into shutdown mode like a coma for the next 48 days during that time she developed blood clots on the brain.
The lack of communication really hinders her ability to tell her parents and the doctors how she is feeling. This is where they learned about the Tobii communication device. The Tobii speech generating device enables effective communication in all forms – from voice output, environmental control, computer access to long distance communication. Rugged design, unparalleled power management, support for touch to gaze interaction and more make the I-Series ideal for everyday use.
Chris aims to raise pledges equaling $500 per lap across the more than 300 race laps he expects to race in 2014 season. Please help he and Naomi in their journey by donating here.
We harness the power and excitement of motorsports to raise awareness for child-related causes. In the past several years combined we've donated over $320,000 to children's charities. That amount wasn’t just raised—it was donated. Which we’re very proud of. But we want to give much much more. We realize that to give more, we need to grow more.
Guardian Angel Motorsports has a 501c3 tax exempt nonprofit status with the IRS. We want to grow our efforts and donate money to both charities and individuals that are in need.
