Renowned Doctor Addresses Virginia Support Group's Concerns About Rare Blood Vessel Disease

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HHT is a genetic blood vessel disease that affects 1 in every 5,000 people worldwide, yet the majority of the public remain unaware of it. Cure HHT, The Virginia Regional Network Alliance (RNA) and Dr. Raj Kasthuri are taking steps to change that at the meeting at George Mason University on Jan. 24.

Roughly 1.4 million people across the world are born with Hereditary Hemorrhagic Telangiectasia (HHT), a genetic blood vessel disorder that causes unexpected and extreme bleeding, leading to serious health complications or death.

The Virginia Regional Network Alliance, a group under the Cure HHT umbrella, is hosting Dr. Raj Kasthuri, Director of the UNC HHT Center for Excellence, on Jan. 24 to discuss managing symptoms and the latest in research.

Groups like the Virginia RNA are designed to give individuals and families an opportunity to share personal experiences, knowledge of the disease and strategies for quality of life. It's about learning you are not alone, without help or hope.

Time: 1:30 p.m. to 3 p.m.
Date: January 24, 2015
Place: George Mason University — Johnson Center Library
4400 University Drive, Fairfax, VA 22030

For more information or to organize an interview contact Cure HHT Communications Manager at lauren.linhard(at)curehht(dot)org.

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Lauren Linhard
Cure HHT
+1 410-357-9932
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Lauren Linhard, Communications Manager
Cure HHT
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