Today’s technologies can allow research to be conducted on a much larger scale and at much lower costs. However, the surrounding policies, practices, and ethics also need to evolve in order to keep up with the times.
Waltham, MA (PRWEB) April 01, 2015
Noted advocate of open access in clinical research and Chief Commons Officer at Sage Bionetworks, John Wilbanks, will deliver the keynote presentation at the 2015 OpenClinica Global Conference (OC15), to be held May 31 - June 1 in Amsterdam. OpenClinica is the largest open source community in the clinical research field, and OC15 will bring together both clinical research and IT professionals to share cutting-edge information and ideas around how open source is being used to transform the clinical research landscape.
John Wilbanks has been internationally recognized for his paradigm-shifting ideas about clinical research. An expert on open innovation systems, his work focuses on how individuals working together in open spaces can produce powerful new models for clinical research. Mr. Wilbanks is also noted for helping Apple develop their ResearchKit platform, which is expected to be released as open source software this spring.
The topic of Mr. Wilbanks’ address, “An Open Source Approach To Informed Consent,“ will help set the tone for the event. According to Mr. Wilbanks, “Today’s technologies can allow research to be conducted on a much larger scale and at much lower costs. However, the surrounding policies, practices, and ethics also need to evolve in order to keep up with the times. Re-engineering these policies and practices - in particular the process of informed consent - based on the principles of open source can increase research participation and efficiency. I look forward to sharing these ideas with OpenClinica community.”
In addition, the OpenClinica conference will feature a broad range of topics such as patient engagement, PACS/DICOM integration, ResearchKit, optimizing performance, security, privacy, and regulatory compliance, web services, ePRO, randomization, and more. Attendees will also have the opportunity to develop their skills with a full day of hands-on workshops, and see live demonstrations of innovative tools and extensions for the OpenClinica platform developed by OpenClinica community members. Learn more and view the full conference program at https://community.openclinica.com/conference.
OpenClinica is the world’s leading open source platform and community for clinical research data capture and management. With thousands of implementations at biopharmaceutical companies, contract research organizations, academic, and government organizations worldwide, the OpenClinica software facilitates electronic data capture and data management, increasing the speed of collection and quality of data in clinical trials. OpenClinica supports HIPAA, 21 CFR Part 11, and other regulatory guidelines and is designed as a standards-based, extensible, and modular platform. For more information, visit https://community.openclinica.com/.
About John Wilbanks
John Wilbanks is the chief commons officer at Sage Bionetworks and a data commons expert and advocate. He has spent his career working to advance open content, open data and open innovation systems. Wilbanks also serves as a senior fellow at FasterCures, and as a senior advisor for big data to the National Coordination Office. Previously, Wilbanks worked as a legislative aide to Congressman Fortney “Pete” Stark, served as the first assistant director at the Berkman Center for Internet & Society, founded and led to acquisition the bioinformatics company Incellico, Inc., and was vice president of science at Creative Commons. In February 2013, in response to a We the People petition that was spearheaded by Wilbanks and signed by 65,000 people, the U.S. government announced a plan to open up taxpayer-funded research data and make it available for free. Wilbanks holds a B.A. in philosophy from Tulane University and also studied modern letters at the Sorbonne.