Buildings, Bridges and Monuments Around the World Shine a Light on NF for Awareness Month

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Children's Tumor Foundation campaign draws attention to rare genetic disorder

The Children’s Tumor Foundation is pleased to announce that, in honor of May NF Awareness Month, buildings, bridges and monuments across the globe will light up blue and green, the official colors of neurofibromatosis (NF).

Neurofibromatosis is a genetic disorder that can cause tumors to grow on nerves throughout the body. It affects one in 3,000 people of all populations; there is no effective treatment or cure. Shine a Light on NF is one part of the Children’s Tumor Foundation’s month-long awareness campaign that includes online and offline events designed to educate the community about this under-recognized genetic disorder.

As of today, the following places have buildings, bridges or monuments that are Shining a Light on NF:

May 1-31 Manchester, NH City Hall Plaza
May 1-31 Detroit, MI One Woodward
May 1-31 Detroit, MI The Z
May 1-31 Detroit, MI First National Building
May 1-31 Detroit, MI One Campus Martius
May 1-31 Detroit, MI One Detroit Center
May 2-3 Philadelphia, PA PECO Crown Lights
May 17-23 Syracuse, NY National Grid
May 17     New York Niagara Falls    
May 17    Boise, ID 8th and Main
May 17    Cincinnati, OH Horseshoe Casino Cincinnati
May 17    Cleveland, OH Quicken Loans Arena
May 17    Cleveland, OH Terminal Tower    
May 17    Dallas, TX Bank of America building
May 17    Orlando, FL Florida Hospital Ginsburg Tower    
May 17    Phoenix, AZ Tovrea Castle
May 17    Portland, OR The Morrison Bridge
May 17    Richmond, VA Science Museum of Virginia
May 17    Toronto, Canada CN Tower
May 17    United Kingdom Royal Border Bridge

In addition to Shine a Light on NF, during NF Awareness Month every dollar donated to the Children’s Tumor Foundation will be doubled thanks to generous matching gift donations from Jim Bob and Laurée Moffett (NF1), Carol Harrison (NF2), and Richard and Erica Horvitz (schwannomatosis).

As well, the Children’s Tumor Foundation is launching a new campaign called “I Know a Fighter,” which aims to draw attention to the inspirational and remarkable stories of those living with NF, who are fighters in every sense of the word. The campaign will take place across multiple platforms and include a heavy social media presence centered on those fighting NF and those who support them in their fight.

The Children's Tumor Foundation is committed to finding effective treatments for the millions of people worldwide living with neurofibromatosis. In addition to benefitting those who live with neurofibromatosis, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community.

Additional information about the Children’s Tumor Foundation’s May NF Awareness month campaign can be found at http://www.ctf.org.

About Children’s Tumor Foundation
The Children's Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2, and schwannomatosis. NF can cause tumors to grow on nerves throughout the body and may lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain. NF affects one in every 3,000 people, more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined. The Children’s Tumor Foundation funds critical research into neurofibromatosis. In addition to benefiting those who live with NF, this research is shedding new light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community. For more information, please visit http://www.ctf.org.

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Simon Vukelj
Children's Tumor Foundation
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