#Dance4Rett and Rettsyndrome.org Raising Awareness and Funding for Rett Syndrome Research

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Viral campaign started by parents of girls with Rett syndrome builds community and momentum toward treatments.

Everyone deserves a chance to dance. That’s the message of a new viral dance campaign that is helping spread awareness of Rett syndrome, a debilitating neurological condition which predominantly affects young girls.

It began when a few families of girls with Rett decided to make the videos and encourage others via social media to either dance or donate. Now, more than sixty #Dance4Rett videos have been shared, generating thousands of supporting likes, comments and shares, and more are being posted every day at http://Dance4Rett.org.

“I would quite literally do anything for my daughter Maggie, who has Rett syndrome” said AJ Tesler, of Los Angeles. “Making a video dancing with her felt not just like I was helping the cause, but also like a refreshingly typical thing for a dad to be doing with his daughter.”

Rett syndrome is a non-inherited genetic neurological disorder affecting mostly females starting twelve to eighteen months after they are born. It has a wide range of symptoms, often including losing the abilities to speak, walk, or use their hands purposefully.

Rettsyndrome.org, the international organization leading the way on Rett research, along with CureRett.org, their UK-based partner, are hoping to expand this campaign further. They aim to raise $50,000 through #Dance4Rett. Every donation goes directly to advancing clinical trials for the first potential treatments for Rett.

To see that friends, family and people we have never met are making dance videos to help our daughters - it's truly inspiring" said Rett parent Rajat Shah, chairman of Rettsyndrome.org.

People can support the effort by watching the videos at http://Dance4Rett.org, by donating, and of course, by making their own videos.

1.    Record yourself doing your dance, and say “I’m dancing for Rett syndrome awareness, because everyone deserves a chance to dance”.
2.    Post your video to YouTube, Facebook, Twitter and Instagram. Be sure to mention #Dance4Rett and Dance4Rett.org.
3.    Challenge 3 friends to “Dance or Donate.”

About Rettsyndrome.org
Rettsyndrome.org is accelerating research for treatments and a cure for Rett syndrome. As the world’s leading private funder of Rett research, we have funded more than $35 million in peer-reviewed research grants and programs to date. We are a 501(c) 3 organization, earning Charity Navigator’s most prestigious 4-star rating. We empower families to make a difference. Visit http://www.rettsyndrome.org to learn more, or call (800) 818-7388 (RETT).


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Megan Betsch
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