ALS Association CEO Accepts Patient’s Invitation to Join ALS Believe Team

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After patient challenges Association to set a deadline to cure the disease

ALS Association's Newhouse and Jerry Dawson with Anna and Chris Rosati

An ALS patient who is inviting a unique group to collaborate can now add ALS Association CEO Barbara Newhouse to his team.

“That Barbara is open to trying something so unique is very promising,” says Chris Rosati who suffers from ALS and created the Believe Team. “If everyone on this team believes there’s a better way, then I bet we’ll do something special.”

“The ALS Association is ‘all in’ when it comes to finding a treatment and cure for this disease,” said Newhouse. “Chris’ passion is inspiring and his urgency is crucial in this fight. The Believe Team is a positive force for this community and we’re proud to be a part of it.”

In addition to Newhouse, the director of the Duke ALS Clinic, entrepreneurs, executives from CRO and nonprofit, as well as several persons with ALS have all accepted invitations. Representatives from large and small pharma and venture capital will also be invited. The only person to not respond was Richard Moscicki, MD from the FDA.

“I intentionally invited folks who know how the system works, as well as those who don't care how it works,” says Rosati. “The reliance on science has not worked. So let’s innovate outside the lab.”

About the Believe Team
The ALS Believe Team is part of the #by2021 initiative which began with an ALS patient’s video message challenging ALSA’s CEO to set a deadline for a cure. The Believe Team is collaborating on a mock scenario patient Chris Rosati referenced in his article Audacity. For more information visit http://by2021.org/believe_team/.

About the ALS Association
The ALS Association is the only national non-profit organization fighting Lou Gehrig's Disease on every front. By leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure. For more information about The ALS Association, visit our website at http://www.alsa.org.

Related links:
http://www.cbsnews.com/news/als-advocate-seeks-a-cure-by-2021/
http://abc11.com/health/durham-man-demands-als-cure-by-2021/823817/

Contacts
Chris Rosati | 919.599.2833 | cr(at)inspiremedianetwork(dot)org
ALSA | Carrie Munk | 202.465.8807 | cmunk(at)alsa-national(dot)org

SOURCE: by2021

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Chris Rosati

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