MPN Research Foundation Encourages People to Use Social Media During September to Raise Awareness for People Living with Myeloprolifertive Neoplasms

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During September as part of Blood Cancer Awareness Month, MPN Research Foundation asks people to raise awareness for myeloproliferative neoplasms by changing their Facebook profile picture

September 1st marks the beginning of Blood Cancer Awareness Month. Rare, chronic, blood cancers like Essential Thrombocythemia, Polycythemia Vera and Myelofibrosis (the Philadelphia-Chromosome negative myeloproliferative neoplasms, or MPN) touch so many more than we realize. Many people are only a few degrees of separation from someone living with PV, ET and MF but don't know it. To raise awareness for the need for funding more research into the causes and potential treatments of MPN, the MPN Research Foundation is asking that supporters show solidarity with the hundreds of thousands of people diagnosed with an MPN worldwide by changing their profile picture on Facebook to one of the images below or found here: http://www.mpnresearchfoundation.org/Raise-Awareness-During-BCAM-With-One-Picture

Obviously, changing a profile picture is not going to change anyone’s prognosis, but it can let people diagnosed with PV, ET and MF know that they are not alone. There is strength in numbers, and it is time to stand up and acknowledge that living with an MPN is hard and scary. However, there is reason to hope when those diagnosed with an MPN unite to confront their future head-on with focused research efforts and better education across the community.

In spite of significant advances in MPN science, there are still no therapies that truly alter the course of these progressive diseases. The Foundation continually tries to identify new and effective avenues to advance MPN research, but it takes a coordinated world-wide effort to bring these advances to reality for patients. Raising awareness is an important part of this effort.

About The Myeloproliferative Research Foundation
The MPN Research Foundation was founded by patients, for patients. It is the only organization solely dedicated to funding research into the myeloproliferative neoplasms, a group of rare blood cancers which include polycythemia vera, essential thrombocythemia and myelofibrosis. Founded in 2000, the Foundation helps patients find a way to help change their prognosis by taking part in funding research, educating themselves and others about MPNs and participating in clinical trials.

To date, the Foundation has awarded over ten million dollars for MPN research. More information may be obtained at http://www.mpnresearchfoundation.org or by contacting us at mwoehrle(AT)mpnresearchfoundation.org or 312-683-7243

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Michelle Woehrle
@MPN_RF
since: 10/2010
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MPN Research Foundation
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