The creation of a national registry will help raise awareness and advocacy, expand resources and support networks, and provide hope for families...
(PRWEB) September 01, 2015
The first mesothelioma registry, which would be put in place by a bill now making its way through Congress, is likely to make it easier for mesothelioma patients to access the highest level of care. Surviving Mesothelioma has just posted an article on the proposed legislation and its potential implications for patients. Click here to read it now.
Cancer registries collect and track national patient data so that doctors and clinics treating diseases like mesothelioma can access the best evidence-based information and potentially improve their care.
“In addition to promoting and coordinating research efforts to better treat and combat mesothelioma, the creation of a national registry will help raise awareness and advocacy, expand resources and support networks, and provide hope for families like those of Mary Jo Lawyer Spano,” bill sponsor Rep. John Katko of New York said in a statement.
Spano was a New York woman who died of mesothelioma late last year after a four-year battle with the asbestos-linked cancer.
“A mesothelioma registry could have profound implications for patients. If this bill passes, as it is expected to, it would be a significant step forward for both research and treatment efforts,” says Alex Strauss, Managing Editor of Surviving Mesothelioma.
To learn more about the legislation and about the potential advantages of a mesothelioma registry, see New Mesothelioma Registry May Open Treatment Doors for Patients, now available on the Surviving Mesothelioma website.
News Release, “Katko Introduces Bipartisan Legislation to Create National Mesothelioma Patient Registry”, July 29, 2015, Katko website, https://katko.house.gov/media-center/press-releases/katko-introduces-bipartisan-legislation-create-national-mesothelioma
For nearly ten years, Surviving Mesothelioma has brought readers the most important and ground-breaking news on the causes, diagnosis and treatment of mesothelioma. All Surviving Mesothelioma news is gathered and reported directly from the peer-reviewed medical literature. Written for patients and their loved ones, Surviving Mesothelioma news helps families make more informed decisions.