FSH Society Awarded Four-Star Rating by Charity Navigator for Eighth Consecutive Year

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FSH Society receives four-star rating by Charity Navigator.

The FSH Society, the Massachusetts-based non-profit and global leader in the quest to cure Facioscapulohumeral Muscular Dystrophy (FSHD), today announced it has received its eighth consecutive Charity Navigator four-star rating. The FSH Society received a score of 99.4 out of a possible 100 percent perfect score. Less than two percent of the organizations rated by Charity Navigator have received eight or more consecutive four-star evaluations, indicating that the FSH Society outperformed most other charities in America.

The four-star rating from Charity Navigator demonstrates that the FSH Society adheres to good governance and other best practices that minimize the chance of unethical activities and consistently executes its mission in a fiscally responsible way. This rating differentiates the FSH Society from other organizations and demonstrates to the public that it is worthy of their trust.

“In this competitive philanthropic marketplace, Charity Navigator, America's premier charity evaluator, highlights the fine work of efficient, ethical and open charities,” said Michael Thatcher, President and CEO, of Charity Navigator. “Our goal in all of this is to provide donors with essential information needed to give them greater confidence in the charitable choices they make.”

Affecting an estimated one out of every 8,000 individuals, or 870,000 people worldwide, FSHD is one of the most common muscular dystrophies. The genetic disorder presents a lifelong progressive loss of skeletal muscles, typically attacking the muscles of the face (facio), shoulder blades (scapula), arms (humerus), trunk and legs, although it can progress to affect any skeletal muscle. It has a significant profile as a genetically inheritable, debilitating and crippling condition with variable expression among patients. Approximately one-quarter to one-third of patients will require a wheelchair after age fifty.

“We are honored to be recognized as a top charity in the country for the eighth consecutive time,” said Daniel Perez, co-founder and President and CEO of the FSH Society. “This award succinctly validates the excellent work of our Board, Scientific Advisory Board, staff, grantees and donors in fulfilling our mission of elevating the profile of FSHD, uniquely bringing forward just exactly how FSHD is caused biologically and how to slow the progression or even stop FSHD. We are deeply appreciative of Charity Navigator’s work in highlighting the good work we accomplish.”

In their recently released 2014-2015 Donor Impact Report, the FSH Society reported that more than 3,000 donors from around the globe contributed to the charity. Fifty-four percent of the Society’s total revenue came from individual gifts. Most importantly, 91.6 percent of its total expenditures went to programs serving the Society’s mission: funding scientific research and delivering educational information and direct services to patients, families, researchers and doctors.

About the FSH Society:
The FSH Society, founded in 1991 by two FSHD patients, is a world leader in combating muscular dystrophy. The non-profit has provided millions of dollars in seed grants to pioneering research worldwide, creating an international collaborative network of patients and researchers. The FSH Society seeks to serve as a source of information and support for all patients and families with FSHD; act as a driving force in the development of research directed towards treatments and ultimately a cure; and bring support to patients and research for FSHD through effective engagement of governmental and private sector organizations and entities. For seven consecutive years, the Society has received the Charity Navigator’s four-star rating, the highest distinction held by less than four percent of non-profit organizations in the country. The FSH Society offers a community of support, news and information for FSHD patients and families through its website at http://www.fshsociety.org. For more information about FSHD, please contact the Society at 781-301-6649.

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