RURO Announces Collaboration with Snyder Robinson Foundation

Share Article

In celebration of Rare Disease Day, company highlights promising partnership with nonprofit.



RURO’s heart is with the Snyder Robinson Foundation

RURO, Inc., a leading LIMS and other sample management solutions provider, announced its ongoing partnership with the Snyder Robinson Foundation as both organizations celebrate Rare Disease Day 2016.

  • Snyder Robinson Syndrome is a rare condition imparting X-linked Intellectual Disability
  • Snyder Robinson Foundation collects knowledge on the disease worldwide
  • RURO has partnered with the foundation to optimize data collection and management

Snyder Robinson Foundation is a nonprofit dedicated to furthering knowledge about Snyder Robinson Syndrome through the acquisition and sharing of information with families, medical professionals and researchers. The disease only affects males and creates a spectrum of intellectual and other disabilities. Snyder Robinson Foundation hopes that its work may lead to eventual improvement of treatment options.

RURO met with the foundation towards the end of 2015 and was pleased to find that its software could support their important global data collection work. RURO completed deployment of Limfinity® for Snyder Robinson Foundation and now hopes the nonprofit will realize great benefit from its data management features.

“Working with Snyder Robinson Foundation gave us a lot,” says Amanda Links, RURO’s project lead. “A lot of respect for them and the work they do, a lot of appreciation for the unique challenges of combatting Rare Disease and a lot of satisfaction at the end of the day.”

Limfinity® contains advanced query tools, report template creation and secure access controls: each can make difficult data aggregation, retrieval and sharing more efficient.

“RURO’s heart is with the Snyder Robinson Foundation,” says CEO, Vladimir Lebedev.

About RURO, Inc.
Founded in 2006, RURO specializes in Laboratory Information Management Solutions. RURO’s Limfinity is the central data management solution in many of the world’s leading Translation Science programs and Biobanks. RURO is Laboratory Information Bliss. Visit RURO at for more information.

Share article on social media or email:

View article via:

Pdf Print

Contact Author

Timery DeBoer, Ph.D.
RURO, Inc.
+1 (888) 881-7876 Ext: 1
Email >

Tom Dolan
RURO, Inc.
888-881-7876 1
Email >
since: 12/2010
Like >
Follow us on
Visit website