International Essential Tremor Foundation to Host Research Teleconference for Patients

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Free educational teleconference series to focus on the life-altering neurological condition called essential tremor.

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There is a driving need for ET research and by hearing from experts in the field, we can give people greater knowledge about the progress that’s been made and the hope for tomorrow.

The International Essential Tremor Foundation (IETF) will host its second call in a free educational teleconference series focusing on a different topic each session on the life-altering neurological condition called essential tremor (ET). This teleconference call will feature the topic: Research: Where Are We Now & Where Are We Going and will take place on Thursday, June 30 at 4pm CST/ 5pm EST/ 3pm MST/ 2pm PST. Experts in ET care and research will provide up-to-date information in a teleconference format followed by a question-and-answer period. Registrations are limited and required. More information and registration is available at 888.387.3667 or http://www.essentialtremor.org/seminars.

The IETF has teamed-up with world-class neurologists and experts to host a one-hour call featuring presentations by doctors on the past and current essential tremor research and outcomes, and the future prospects for better treatments and a cure. Participants simply call in to the number provided at registration and hear experts discuss the latest news on a variety topics involving ET from the comfort of their home. No computer or Internet access is needed. Speakers include:

  •     Mark Hallett, MD – Neurologist; Chief, Human Motor Control Section, NINDS, NIH; IETF Medical Advisory Board Co-Chair
  •     Holly Shill, MD - Neurologist; Director, Lonnie and Muhammad Ali Movement Disorder Center, Department of Neurology; IETF Medical Advisory Board Co-Chair
  •     Facilitator Patrick McCartney; IETF Executive Director

“There is a driving need for ET research and by hearing from experts in the field, we can give people greater knowledge about the progress that’s been made and the hope for tomorrow,” IETF Executive Director Patrick McCartney said. “This new teleconference series is just one way the IETF actively works to create awareness of the condition, fund critical, ground-breaking scientific research and offer support to those affected by this life-altering condition.”

ET, which affects nearly 10 million people in the U.S., is the most common neurological movement disorder, but is frequently misdiagnosed as Parkinson’s disease. The condition is often characterized by rhythmic, involuntary and uncontrollable shaking of the hands and arms during movement, making daily tasks such as eating, drinking and writing difficult if not impossible. Sometimes ET can also affect the head, voice, legs and trunk. At this time there is no cure for essential tremor.

About The International Essential Tremor Foundation:
Headquartered in Lenexa, KS, and founded in 1988, the International Essential Tremor Foundation is the leading organization in the world dedicated to those affected by essential tremor. The mission of the IETF is to fund research that will find the cause of essential tremor and lead to better treatments and a cure, increase awareness about ET, and provide educational materials, tools and support to healthcare providers, the public, and those directly affected by ET.

The IETF has distributed nearly $1 million in research grants, to fund numerous promising studies, in the search for the cause of ET. The Foundation has hosted numerous community awareness events across the U.S. to provide those affected with the basic knowledge necessary to become their own advocate when seeking treatment. And, the IETF also provides assistance to a vast network of support groups around the world. To learn more about essential tremor and the IETF mission, visit the IETF website at http://www.essentialtremor.org.

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Patrick McCartney
@essentialtremor
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