Americans Lack Awareness About Heart Valve Disease, New Public Opinion Surveys Find

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New public opinion surveys from the Alliance for Aging Research reveal the urgent need for more awareness about heart valve disease. The organization also announces the launch of an effort to designate February 22 as National Heart Valve Disease Awareness Day.

New public opinion surveys released today by the nonprofit Alliance for Aging Research (Alliance) show that public awareness about heart valve disease (HVD) in the U.S. is alarmingly low. A national omnibus survey of 2,018 adults reveals that, while over half of respondents say they have heard of heart valve disease, less than one in four know somewhat or a great deal about HVD. Although awareness increases with age, 30 percent of those over the age of 65 say that they know nothing about HVD.

The results will be discussed in a webcast at 10 a.m. EST today. The webcast is available here.

“Considering that heart valve disease affects more than five million Americans, public awareness of the condition is shockingly low,” says Susan Peschin, MHS, Alliance president and CEO. “Coupled with disease symptoms that are often difficult to detect or dismissed as a normal part of aging, this is a classic case of ‘what you don’t know can hurt you.’”

Heart valve disease involves damage to one or more of the heart’s valves. While some types are not serious, others can lead to major complications—including death. Most valve diseases involve a damaged valve that disrupts blood flow by not opening or closing properly.

These problems increase with age, as one in eight people age 75 and older are estimated to have moderate to severe heart valve disease.

The surveying was done in collaboration with Belden Russonello Strategists, who put questions on Telephone CARAVAN, a national omnibus survey of adults via randomly selected landlines and cell phones.

The Alliance also worked with Belden Russonello Strategists to conduct an in-depth analysis to learn more about awareness levels and the experiences of heart valve disease patients as they are diagnosed and seek treatment. A survey group of more than 400 individuals diagnosed with HVD was recruited through the Harris Panel—including members of its third party panel providers. The panel provides a robust representative sample of the general U.S. population. Additionally, patient focus groups in Chicago and New York provided a qualitative look at the patient experience.

Key findings from the online survey include:

  • More than two thirds of the survey respondents knew a limited amount or nothing about HVD prior to their diagnosis.
  • Six in 10 respondents were diagnosed with heart valve disease only because they went to see a health care provider for a regular checkup or some other issue.

(Complete results from the surveys and focus groups can be found here. The public opinion tools were conducted with unrestricted educational support from Edwards Lifesciences Foundation.)

The potential seriousness of the condition and the current lack of awareness are the reasons why the Alliance is partnering with 29 national organizations to call on the U.S. Department of Health and Human Services (HHS) to include National Heart Valve Disease Awareness Day, beginning annually on February 22, 2017, on its National Health Observances Calendar.

“The goal of an annual National Heart Valve Disease Awareness Day on February 22 is to increase recognition of the specific risks and symptoms of heart valve disease to improve detection and treatment—and ultimately save lives,” says Peschin. “The good news is that, while heart valve disease can be serious, innovative treatment saves lives and enables most patients to enjoy significant improvements in their quality of life. In this case, education and awareness have the potential to make a tremendous difference.”

For additional details about the public opinion surveys, heart valve disease, and the National Heart Valve Disease Awareness Day, please visit here.

About the Alliance for Aging Research

The Alliance for Aging Research is the leading nonprofit organization dedicated to accelerating the pace of scientific discoveries and their application in order to vastly improve the universal human experience of aging and health. The Alliance was founded in 1986 in Washington, D.C., and has since become a valued advocacy organization and a respected influential voice with policymakers. Visit http://www.agingresearch.org for more information.

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Noel Lloyd
@Aging_Research
since: 09/2011
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