Rare disease patients are the focus of our organization. One of our founders is a rare disease patient, and our unwavering commitment to improve healthcare for patients is evident in all that we do. We are proud to Partner with NORD and Rare Disease Day®
Kansas City, Missouri (PRWEB) February 25, 2016
Heritage Biologics has joined forces with 30 million Americans and health care advocates around the world for Rare Disease Day® on February 29. Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges people face.
Heritage Biologics will be hosting an open house Rare Disease Day® Awareness event at their new state-of-the-art pharmacy headquarters in Lee’s Summit, Missouri. Heritage Biologics is a rare disease specialty pharmacy focused on providing a new patient experience. They are leading the charge on the Patient Experience movement that is redesigning how rare disease patients are cared for.
“Rare disease patients are the focus of our organization. One of our founders is a rare disease patient, and our unwavering commitment to improve healthcare for patients is evident in all that we do. We are proud to Partner with NORD and Rare Disease Day®,” said Tom O’Neill, CEO at Heritage Biologics.
The Heritage Biologics Rare Disease Day® Awareness open house event is open to the general public, and all are invited to stop by the Lee’s Summit location from 12pm-7pm on Monday, February 29th, 2016. Our pharmacists, nurses, and registered dietitians will be at the event as a resource for patients. The address is: 255 NW Victoria Drive, Lee’s Summit, Missouri. Please call 855-WE-R-RARE if you would like directions or more information about the event.
According to the National Institutes of Health (NIH), a disease is rare if it affects fewer than 200,000 people. Nearly 1 in 10 Americans live with a rare disease—affecting 30 million people—and two-thirds of these patients are children. There are more than 7,000 rare diseases and only approximately 450 FDA-approved medical treatments.
Rare Disease Day takes place every year on the last day of February (February 28 or February 29 in a leap year)—the rarest date on the calendar—to underscore the nature of rare diseases and what patients face. It was established in Europe in 2008 by EURORDIS, the organization representing rare disease patients in Europe, and is now observed in more than 80 nations. Rare Disease Day is sponsored in the U.S. by the National Organization for Rare Disorders (NORD)®, the largest and leading independent, nonprofit organization committed to the identification, treatment, and cure of rare diseases.
For more information about Rare Disease Day in the U.S., go to http://www.rarediseaseday.us. For information about global activities, go to http://www.rarediseaseday.org). To search for information about rare diseases, visit NORD’s website, http://www.rarediseases.org. For more information on Heritage Biologics, go to http://www.heritagebiologics.com.
Christopher Kennedy, Heritage Biologics, 816-875-5113, ckennedy(at)heritagebiologics(dot)com
Jennifer Huron, NORD, 203-744-0100, jhuron(at)rarediseases(dot)org