Finding New Ways to Use Patient Reported Outcomes Part of ISOQOL Annual Conference

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Symposium on Users’ Guide for integrating PROs in Electronic Health Records

"No one knows better about what’s going on with the patient than the patient."

Patient-Reported Outcomes (PROs) are becoming a highly-utilized tool in healthcare and medical research. Doctors and healthcare organizations are using patient-reported data to both inform and improve treatment plans and standards of care.

“The patient voice has become as important as things like laboratory testing,” says Dr. Claire Snyder of Johns Hopkins University. “Thanks to advances in technology, patient input is able to be gathered and used better than ever before.”

As use of PROs grows, there is an increased demand for integrating these data into Electronic Health Records (EHRs).

That is why Snyder, along with Dr. Albert Wu of Johns Hopkins University, is leading a program on the “Users’ Guide for Integrating Patient-Reported Outcomes in Electronic Health Records: Design and Implementation Considerations” at the International Society for Quality of Life Research (ISOQOL) Annual Conference, October 18-21, in Philadelphia, Pennsylvania.

Snyder says these tools allow healthcare providers opportunities to improve the quality of care across a spectrum of settings, from primary care to managing chronic conditions to end-of life care.

“No one knows better about what’s going on with the patient than the patient,” Snyder says, “and when you can combine that with your clinical knowledge you’re in a better position to work with patients, manage their care, and improve outcomes.”

The Users’ Guide symposium will look at many issues involved in integrating PROs in EHRs, including governance, gathering and reporting results, and possible ethical and legal considerations.

If you are interested in learning more about the Users’ Guide, or setting up an interview with Dr. Snyder, please contact ISOQOL Executive Director Colleen Pedersen at (414) 918-9797 or cpedersen(at)isoqol(dot)org.

About ISOQOL: The International Society for Quality of Life Research (ISOQOL), established in 1993, is a non-profit society to advance the scientific study of health-related quality of life and other patient-centered outcomes to identify effective interventions, enhance the quality of health care and promote the health of populations. ISOQOL provides the premiere opportunity for those in the quality of life research field to connect and network.

Quality of life has become a prominent subject in philosophy, social science, clinical medicine, health services, and outcomes research. ISOQOL fosters the worldwide exchange of information through: scientific publications, international conferences, educational outreach, and collaborative support for health related quality of life initiatives. With over 720 members representing 47 countries, ISOQOL is an international society with activities focused on promotion of high quality research in the science of health-related quality of life (HRQOL) measurement and patient-reported outcomes (PRO).

The Users’ Guide to Integrating Patient-Reported Outcomes in Electronic Health Records was developed by Johns Hopkins University through a contract from the Patient-Centered Outcomes Research Institute (PCORI) under contract number JHU 10.01.14 TO 2 08.01.15.

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Colleen Pedersen
ISOQOL
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