Seattle, WA (PRWEB) May 09, 2014
For a second time this year, Dellann Elliott Mydland, CEO & President of the Pacific Northwest-based Chris Elliott Fund, is traveling to the opposite coast to advocate on behalf of brain tumor patients across the United States. The purpose of this trip is to ensure access for all cancer patients to emerging therapies and medical devices in the War on Cancer. Many emerging therapies and medical device treatment options represent a new approach to treating solid tumors; they frequently fall outside standard reimbursement guidelines, effectively excluding certain groups of patients from access despite FDA approval.
“For cancers where there are few effective treatment options available, it is critical that all patients have access to any FDA-approved therapy or device which could potential extend their life,” says Elliott Mydland. “It is especially important for brain tumor patients where survival is typically measured in months, not years. Although our focus is brain tumor patients, we see these therapies as potentially benefitting patients diagnosed with other cancers, particularly those whose prior treatments have failed. It is just so critical that we set the right precedent.”
This advocacy work comes alongside other activities the Chris Elliott Fund is doing to raise awareness this May for National Brain Tumor Awareness Month. Their other work includes:
About The Chris Elliott Fund
The Chris Elliott Fund (CEF) is a brain cancer and brain tumor patient advocacy organization and national 501(c)(3) non-profit with offices in Redmond, Washington. Established in 2002, the Chris Elliott Fund is furiously committed to finding a cure for brain cancer and to bringing HOPE to the lives of patients and their families. Providing unique, one-on-one, personalized support to brain cancer patients; providing immediate access to advanced treatment options, specialists and comprehensive support programs; provide support and guidance concerning the day to day needs of patients and their caregivers; and educate the general public on matters related to brain tumors and brain cancer and advocate on issues of national public health policies impacting the lives and welfare of brain cancer and brain tumor patients. The organization and its advocates directly serve 1300+ patients and caregivers every month free of charge. CEF is a member of the Society for Neuro-oncologists, American Association of Neuroscience Nurses, American Cancer Association for Cancer Research, Washington Biosciences Association, among others. If we can help, please contact us at WeCare(at)EndBrainCancer(dot)com.