Kidney Cancer Association Simplifies Access to the CONNECT Registry

The CONNECT registry program enables all disease organizations, regardless of size and funding, to collect and share patient data in a controlled and transparent manner.

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Denise Richards and KCA's Carrie Konosky

By working together and sharing information, we can transform medicine in ways that were unimaginable a decade ago.

Los Angeles, Calif. (PRWEB) January 30, 2014

“By working together and sharing information, we can transform medicine in ways that were unimaginable a decade ago. Your participation may result in speeding therapies from the bench to the bedside, while rapidly increasing our knowledge of disease processes,” says Carrie Konosky, Kidney Cancer Association (KCA) VP for Public Affairs.

“The founding members of CONNECT represent a new breed of advocacy groups committed to collecting and sharing patient data openly, for the benefit of the entire disease community,” says Kyle Brown, founder of PatientCrossroads. “CONNECT is changing the way patient-provided medical history is collected and shared. This approach not only raises the general awareness of specific diseases, it also makes pan-disease patient-provided data broadly available to researchers and pharmaceutical companies to speed their progress toward greater understanding of diseases and new treatment options."

A simple, easy-to-remember domain name enables patients to quickly access the registry. The kidney cancer CONNECT registry may be reached online at http://www.BigRegistry.org and from the KCA website, where more information about the disease, its diagnosis and treatment, is available.

KCA is a USA-based charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. It is the world’s first international charity dedicated specifically to the eradication of death and suffering from renal cancers. It is also by far the largest organization of its kind, with members in more than 100 countries.

One of KCA's newest directors, Hollywood star Denise Richards lost her mother to renal cancer. Richards helps to raise funds and awareness for the charity.


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