Brain Cancer Treatment, Pre-Qualifications for Clinical Trials, Research and Treatment Options, and Policy Change Are a Tall Order; The EndBrainCancer Initiative Does It

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The EndBrainCancer Initiative provides HOPE and guidance to brain cancer patients and their families.

Raising the paddle to end brain cancer

The EndBrainCancer Initiative facilitates a patient's need for immediate access to advanced treatment options.

At a mid-May fundraiser – “Brains Matter” – the EndBrainCancer Initiative raised $80,000 in donations that will fund their “Direct Connect” program. This unique program, provides HOPE and guidance to brain cancer patients and their families; all services are at no-cost to patients and caregivers.

The “Direct Connect” program educates patients about options, prequalifies patients for enrollment in clinical trials, and fuels research. People living with brain cancer get connected with top brain cancer specialists, major brain tumor centers, and cutting-edge therapies throughout the U.S.

Brain tumors can grow very quickly, therefore immediate access to advanced treatments, specialists, and clinical trials is a MUST. For treatment options, EndBrainCancer Initiative collaborates with medical, bio-tech, and pharmaceutical services; diagnostic device suppliers; and the research community. Treatment options expand when organizations work together.

The EndBrainCancer Initiative fuels research through patient education and by patients being paired with top surgeons at leading brain tumor centers. The development of new treatments often results from patients allowing tumor tissue to be saved and used for testing and research. Through a one-on-one, personalized approach, the EndBrainCancer Initiative educates brain cancer patients about clinical trials and their enrollment options. As more patients enroll, the cost of research is reduced and the speed of research accelerates.

Surgical outcomes are improved when patients are referred to top neuro-surgeons, thereby reducing medical expenses and reimbursement costs of healthcare.

The EndBrainCancer Initiative advocates the use of MGMT (a DNA repair protein) and genomic DNA testing. Correctly defining the genetic characteristics of a tumor leads to a personalized-therapy approach by narrowing down treatment options to those most effective.

The patient advocacy work of the EndBrainCancer Initiative is dependent upon the philanthropy of generous supporters.

Direct Connect Program video:

About the EndBrainCancer Initiative:

The EndBrainCancer Initiative has been guided by the experiences of its late co-founder, Chris Elliott. Chris struggled to navigate a complicated landscape of brain cancer treatments that was compounded by a lack of guidance and resources. The EndBrainCancer Initiative was founded to facilitate a patient’s need for immediate access to advanced treatment options.

The goal is to always help brain tumor patients and their families gain IMMEDIATE ACCESS to top brain tumor specialists (neuro-surgeons, neuro-oncologists and principal investigators) as well as immediate access to advanced treatments, studies, and clinical trials.

The EndBrainCancer Initiative (EBCI), formerly known as the Chris Elliott Fund, is a national brain cancer and brain tumor patient advocacy organization and national 501(c)(3) social enterprise with offices in Redmond, Washington. Established in 2002, the EBCI is committed to finding a cure for brain cancer and bringing HOPE to the lives of patients and their families. The organization and its staff support 1300+ patients and caregivers free of charge every month through the Direct Connect Program, and provide Education/Awareness/Outreach to over 6 million, including members of the Brain Tumor Community. EBCI is a member of the American Society of Clinical Oncology (ASCO), Society for Neuro-Oncology, American Association of Neuroscience Nurses, American Association for Cancer Research, and Life Sciences Washington, among other organizations.

If we can help, please contact us at WeCare(at)EndBrainCancer(dot)org.

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Media contact: Dennis Noland (206) 622-8011

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Dennis Noland
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