Boston, MA (PRWEB) March 11, 2016
WHAT: To celebrate and support patients and families facing the challenges of mitochondrial disease, the Sandra K. Russell Derby Day Benefit is a Kentucky Derby themed, lively, fun event with cocktails, delicious Derby-inspired food, a live broadcast of the Kentucky Derby race, entertainment, live and silent auctions, and contests to honor the best bow tie and best ladies hat. Partners and sponsors of the event include Stealth Biotherapeutics, Reata Pharmaceuticals, Courtagen Life Sciences, Inc., Acton Pharmacy, Lilly Pulitzer and In The Pink. The Derby Day event raises funds for MitoAction, a nonprofit organization based in Boston that serves as the nation’s foremost advocacy, education, and support organization for patients and families facing the disease.
WHEN: Saturday, May 7; 4:30-9:00 p.m.
WHERE: Mandarin Oriental Boston, 776 Boylston St., Boston, MA
WHY: Mitochondrial disease is an inherited chronic illness that can be present at birth or develop later in life. It causes debilitating physical, developmental, and cognitive disabilities with symptoms including poor growth; loss of muscle coordination; muscle weakness and pain; seizures; vision and/or hearing loss; gastrointestinal issues; learning disabilities; and heart, liver, or kidney failure. About 1 in 4,000 people has Mito. It’s progressive and there is no cure.
Tickets start at: $200 per person; $1,200 per couple for Jockey Club
Visit http://www.mitoaction.org/derbyday for more information or tickets.
MEDIA CONTACT: Ginger DeShaney, 888-648-6228; support(at)Mitoaction(dot)org
TWEET IT: Join @MitoAction in raising awareness about mitochondrial disease at the #MitoDerbyDay on 5/7 at the @MO_Boston! http://www.mitoaction.org/derbyday
MitoAction, a 501(c)(3) charity formally incorporated in 2005, is dedicated to improving the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives. For more information, visit http://www.mitoaction.org.
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