CBTFF Announces the 2018 Head for the Holidays 5K Run/Walk to Benefit Pediatric Brain Tumor Research

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On December 1st, 2018 the inaugural Head for the Holidays 5K Run/Walk will be hosted in Parsippany, NJ and include virtual runners and walkers across the United States.

CBTFF 2018 Head for the Holidays 5K Run/Walk

CBTFF 2018 Head for the Holidays 5K Run/Walk

The CBTFF Head for the Holidays 5K run/walk is a fun and festive way to kick-off the holiday season while raising desperately needed funds for ground-breaking research focused on rare and inoperable pediatric brain tumors.

On Saturday December 1st, 2018 the CBTFF (Children’ Brain Tumor Family Foundation) will hold its inaugural “Head for the Holidays” USATF sanctioned 5K Run/Walk and holiday boutique to raise funds for research focused on rare and inoperable pediatric brain tumors.

The event will be held at the Mack-Cali Business Complex on Campus Drive in Parsippany with 100% of the proceeds benefiting the CBTFF (Children’s Brain Tumor Family Foundation), a volunteer based 501(c)3 non-profit organization dedicated to raising awareness and funding research underway at the Children’s Brain Tumor Project of the Weill Cornell Medical Center at Memorial Sloan Kettering.

A virtual event has been established for those that don’t live in New Jersey or can’t attend the event on December 1st. Those participants can sign up for the virtual 5K online and they will be shipped a race day t-shirt to wear when they run or walk at a location and time of their choosing.

Awards will be presented to runners age 14 & under as well as 5-year age groups starting at age 15 and ending at age 80+. The race is being held on a USATF certified course.

Business and organizations interested in sponsoring the race can download the sponsorship form and a letter outlining the request at https://www.cbtff.org/events.

The CBTFF was founded in 2015 by families united in tragedy and heartbroken from the experience of watching their children and loved ones battle a devastating diagnosis. Even though brain tumors have the highest death rate of all childhood cancers, they have one of the lowest levels of research funding.

The organization is designed to help grieving and frustrated communities convert their passion and anger into awareness, support, and donations for research that is critically underfunded and highly dependent upon financial contributions from the private sector.

Three New Jersey families who have faced the diagnosis of a pediatric brain tumor are joining forces to make a difference in the fight against this deadly disease. Joey Clayton from Rockaway fought bravely for 14 months, before gaining his angel wings in February 2016 at the age of eight. In 2013, Juliana Donnelly from Caldwell was just six years old when she lost her 16-month battle. Sean Ries from Mt. Tabor was first diagnosed in 2012 at the age of four and relapsed in 2017. He’s undergone four brain surgeries and 30 rounds of radiation, but his fight is not over.

Please visit http://www.cbtff.com/events for more details on the event. From the web-site you can register on-line, sign-up for the virtual event, become a sponsor or register as a vendor.

The Children’s Brain Tumor Family Foundation is a volunteer led 501 (c)3 founded by six families impacted by pediatric brain tumors. The organization is dedicated to raising funds for the Children’s Brain Tumor Project.

The Children’s Brain Tumor Project which is the sole beneficiary of the monies raised by the CBTFF is a research effort at Weill Cornell Pediatric Brain and Spine Center, co-directed by Dr. Mark Souweidane and Dr. Jeffrey Greenfield. The project is “powered by families” and donations made by the families, friends, and supporters of the children, teens and young adults who confront the heartbreaking diagnoses of rare and inoperable pediatric brain tumors such as DIPG, gliomatosis cerebri, AT/RT, and thalamic gliomas.

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Amy Lamperti
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