May is 5p- Syndrome Awareness Month
LAKEWOOD, Calif., May 6, 2026 /PRNewswire-PRWeb/ -- In May, the 5p– Society of North America unites with families and organizations from over 95 countries to raise awareness of 5p Deletion Syndrome—also known as Cri du Chat or 5p– Syndrome—a rare genetic condition caused by the deletion of the short arm ("p") of the 5th chromosome.
The syndrome is often identified by a distinctive high-pitched "cat-like" cry, but its effects vary widely. "5p– Syndrome is truly a spectrum," says Laura Castillo, Executive Director of the 5p– Society. "Each individual's capabilities differ greatly—some live independently, while others require full-time care. What unites them is their strength, resilience, and the love they bring to their families."
This year marks the 40th Anniversary of the 5p– Society, the national family support organization dedicated to empowering individuals with 5p– and their "village" of caregivers. Through programs like mini family meetups, the 5p- Society fosters connection, education, and community for families across North America.
"Our mission is to help families see the person, not the disability," says Castillo. "By focusing on what each individual can do, we help them reach their fullest potential."
5p– Awareness Month Campaigns and Events Include:
- 🧦 Stripy Sock Campaign: Wear one long and one short striped sock on May 5 to represent the whole and deleted fifth chromosomes. #stripysocks
- 💕 Faces of 5p– Campaign: Meet children and adults living with 5p– through stories shared on social media.
- 🏃♀️ Virtual 5K for 5p–: Join or create a team for the global "Ruby Run" in celebration of the Society's 40th (ruby) anniversary. #5pminus5k
- 🌍 Where in the World Is C5? Snap a photo with C5, the awareness mascot, and share it using #SeeC5 and #criduchatawareness.
- 💬 Proclamations and Gatherings: States across the U.S. are issuing proclamations, and regional family gatherings are planned throughout North America.
"Join us in celebrating our Ruby Year," encourages Nick Wallace, President of the 5p– Society. "Run, connect, share stories, and raise awareness. Together, we shine brighter."
Each year, about 50–60 children are born worldwide with 5p– Syndrome. While the challenges vary, the need for understanding and support is universal.
For event details and ways to participate, visit www.fivepminus.org or follow @5pminus on social media. You can also subscribe to the 5p- Society Podcast—"Breathe"—for more awareness day updates in May. You can find The Breath Series Podcast on your favorite Podcast streaming service. Search for 5p- Society: BREATHE.
#stripysocks | #5pawareness | #5pminus5k | #SeeC5 | #Facesof5p
Media Contact
Laura Castillo, 5P Society, 1 5628044506, [email protected], www.fivepminus.org
SOURCE 5P Society
Share this article