In this webinar, learn about the unique challenges of patient engagement in rare disease clinical research. Attendees will gain insights into building relationships with patients early in development and approaches for seeking and incorporating patient feedback for feasible study design. The featured speaker will explore various options for enhancing patient experience in rare disease clinical trials.
TORONTO, June 12, 2024 /PRNewswire-PRWeb/ -- Discover an informative webinar that will explore effective strategies for integrating patient perspectives and priorities into rare disease studies to increase engagement, accelerate enrollment and optimize study success.
Rare diseases affect a small percentage of the population but have a profound impact on the lives of both patients and their loved ones. For most patients with rare diseases, the journey to diagnosis is long and the options for treatment are limited.
While clinical trials offer hope for addressing the significant unmet need in rare diseases, rare disease studies must be developed with the patient perspective in mind. Asking patients and caregivers about the challenges they face and the expectations they have of study participation is critical for designing and executing successful clinical trials.
In this webinar, the attendees will gain insights into crucial concepts for rare disease clinical research, including the unique challenges it presents. The expert speakers will focus on methods for building relationships with patients early in the development process, strategies for seeking and incorporating patient feedback to create relevant and feasible study designs and options for enhancing the overall experience of study participation.
Register for this webinar to learn how integrating patient perspectives into rare disease studies can enhance engagement, accelerate enrollment and optimize success.
Join Kris O'Brien, Executive Director Program Strategy, Rare and Pediatric Disease, Premier Research, for the live webinar on Wednesday, June 26, 2024, at 11am EDT (4pm BST/UK)
For more information, or to register for this event, visit Asking the Right Questions: How the Patient Perspective Impacts the Success of Rare Disease Studies.
ABOUT XTALKS
Xtalks, powered by Honeycomb Worldwide Inc., is a leading provider of educational webinars and digital content to the global life science, food, healthcare and medical device communities. Every year, thousands of industry practitioners (from pharmaceutical, biotechnology, food, healthcare and medical device companies, private & academic research institutions, healthcare centers, etc.) turn to Xtalks for access to quality content. Xtalks helps professionals stay current with industry developments, regulations and jobs. Xtalks webinars also provide perspectives on key issues from top industry thought leaders and service providers.
To learn more about Xtalks visit https://xtalks.com
For information about hosting a webinar visit https://xtalks.com/why-host-a-webinar/
Media Contact
Soumya Shashikumar, Xtalks, +1 (416) 977-6555 x371, [email protected], www.xtalks.com
SOURCE Xtalks
Share this article