Clinical Research Webinar Demystified Details for Patients and the Public

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The non-profit organization CISCRP (Center for Information and Study on Clinical Research Participation), hosted AWARE for All – Los Angeles, a free, interactive webinar on November 18th, 2020. The Los Angeles focused program shared critical information about clinical research participation.

"We’re extremely excited to have been able to present this online event with support from a diverse team of stakeholders from the Los Angeles community,” said Joan Chambers, Senior Director, CISCRP.

The non-profit organization CISCRP (Center for Information and Study on Clinical Research Participation), hosted AWARE for All – Los Angeles, a free, interactive webinar on November 18th that:

  • Demystified clinical trials
  • Revealed what the experience is like for participants
  • Reviewed the roles and responsibilities of involved medical professionals
  • Reinforced the critical role that individuals who participate in clinical trials play in advancing new medicines and treatments

Attendees of the webinar were able to submit questions during the program via a secure platform.

The webinar included a facilitated conversation with patients, researchers and health care professionals after an overview presentation given by Dr. Jonathan Jackson, Ph.D., Director of Community Access, Recruitment, and Engagement (CARE) Research Center, Massachusetts General Hospital and the Harvard Medical School. Two health exercises were part of the online program—a memory/brain health exercise offered by Alzheimer’s Los Angeles and Reiki offered by WESpark Cancer Support Center. Attendees also had the opportunity to visit local and national health and wellness organizations who provided educational resources in the virtual exhibit alley.

Access the webinar recording: https://www.ciscrp.org/events/aware-for-all/aware-for-all-events/

Dr. Leanne Burnham of City of Hope shared her thoughts on certain factors that contribute to a positive study experience, such as trust in the institution, the team and when there is a patient-physician match and language matched materials that can help study participants feel more comfortable.

Tomma Hargraves, a clinical trial participant, credits her participation with surviving Stage 3 lung cancer 14 years ago. Since then, she has participated in other clinical trials and serves as a patient liaison helping others navigate clinical trials.

“At CISCRP, helping patients and the public learn about the importance of clinical research participation is at the heart of our mission. We’re extremely excited to have been able to present this online event with support from a diverse team of stakeholders from the Los Angeles community,” said Joan Chambers, Senior Director, CISCRP.

The AWARE for All – Los Angeles supporters include Allergy & Asthma Network, City of Hope, Pancreatic Cancer Action Network, PALS for Health, Alzheimer’s LA, Debbie’s Dream Foundation, Alliance for a Better Community, Being Alive LA, WeSPARK Cancer Support Center, Providence Clinical Research, Peer Plus, and the AWARE Industry Consortium.

CISCRP has hosted other regionally focused webinars in 2020 including Chicago, Philadelphia and Raleigh. A December 8th webinar is scheduled for Miami. Learn more about these events: https://www.ciscrp.org/events/aware-for-all/aware-for-all-events/

About CISCRP
The Center for Information and Study on Clinical Research Participation (CISCRP) is a 501(c)(3) non-profit organization dedicated to engaging the public and patients as partners in the clinical research process. CISCRP provides free education and outreach to the general public and patient communities. Visit http://www.CISCRP.org for more information or to participate in CISCRP’s educational initiatives. For additional questions about AWARE for All, contact awareforall@ciscrp.org or call 877-633-4376.

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Joan A. Chambers
CISCRP
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