Expert panelists Dr. Fabian Sandoval, founder of the Emerson Clinical Research Institute; and Daniel DeFabio, co-founder of The Disorder Channel, join ClinOne CEO Andrea Valente
BOSTON, Sept. 19, 2022 /PRNewswire-PRWeb/ -- ClinOne, the leading provider of Adaptive Experiences for clinical trial participants, continues its drive to make rare disease trials more accessible and impactful with an important discussion in a new Xtalks webinar.
On September 20 at 12pm ET, ClinOne CEO Andrea Valente will join expert panelists Daniel DeFabio, co-founder of the Disorder Channel, and Dr. Fabian Sandoval, President and CEO of the Emerson Clinical Research Institute. The conversation will cover essential topics such as the experience (and hope) for patients and caregivers in a rare disease trial, challenges ensuring diversity representation in patient recruitment, and how adaptive technology can help.
Xtalks: "Rare Disease Clinical Trials: Site, Advocate and Technology Insights"
Date and Time: Tuesday, September 20, 2022, 12-1pm EDT/5-6pm BST /6-7pm CEST
Register here
Attendees will gain insights into…
- The realities, considerations and hope of rare disease clinical trials for families and caregivers
- Challenges sites face finding and enrolling patients, especially when seeking diversity
- Best practices and lessons learned for running and participating in rare disease trials
- What Adaptive Experiences are, and how they can improve trials for all participants
- Existing and new technologies that can have a positive impact on enrollment, retention and compliance
Featured Speakers
Daniel DeFabio (LinkedIn), Co-Founder of The Disorder Channel and Director of Community Engagement for Global Genes, and the parent of a child who had a rare disease, will share the realities of rare disease families – the expectations and hope, frustrations and challenges and the importance of maintaining a positive outlook when participating in a rare disease trial.
Fabian Sandoval MD (LinkedIn) President and CEO of the Emerson Clinical Research Institute, will focus on driving diversity in rare disease clinical trials and how to serve this community. Dr. Sandoval has 25+ years of bench to bedside research experience. His research career has included academia, healthcare systems and the public sector. He also hosts the Emmy-award winning TV program "Tu Salud Tu Familia" (Your Family Your Health).
Andrea Valente (LinkedIn), CEO of ClinOne, will share trends and solutions that consider the participant experience just as much as the data captured during a trial, and how study sponsors and sites can get the most out of them. She is a transformational leader and champion of adaptive experiences for clinical trial participants.
"Rare disease clinical trials are challenging on many levels," Andrea Valente explained. "It is often very difficult to identify eligible patients. Participation is often especially hard for caregivers supporting their loved ones. Furthermore, trial costs routinely exceed $300k per patient. And, in many cases families know that a trial could be their last, best, or only hope for a loved one. So how do you engage and ease the path for the patient and their caregivers so they can stay in the trial and maintain compliance? I am excited for our esteemed panel of experts to cover these critical issues and more."
Register here to join the complimentary webinar.
About ClinOne
ClinOne provides adaptive experiences for participants in clinical trials. By offering choice to patients, caregivers, and site staff, our technology makes it easier to stay active, compliant, and comfortable in a trial – thereby expanding enrollment access, reducing drop-out rate, and shortening conduct timelines. Our true single platform features solutions for local HCP trial awareness, remote and onsite eConsent, Uber Health, medication adherence, and a DCT portal. ClinOne stands alone with the industry's fastest implementation (average 2-6 weeks), cost-efficient scale, and seamless API integrations for complex therapeutic areas such as Oncology, CNS, and Rare Disease in over 60 languages. To learn why more than 55 sponsors and CROs trust ClinOne in 100+ currently active studies to connect, inform, and empower participants to take control of their clinical trial experience, begin a conversation with our experts at http://www.clinone.com.
Media Contact
Brenda Nashawaty, ClinOne, 6176883253, [email protected]
SOURCE ClinOne
Share this article