Engaging Diverse Patient Populations in Rare Disease Clinical Research, Upcoming Webinar Hosted by Xtalks

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In this free webinar, the featured speakers will discuss strategies for engaging diverse patient populations who have rare genetic diseases and effective collaborative strategies between industry and patient advocacy organizations. Attendees will also learn about ways to reduce economic and geographic barriers to clinical trial participation.

Success in rare disease clinical trial enrollment and retention necessitates expanded access, more inclusive outreach strategies, and technology-driven solutions.

When targeting rare genetic diseases for clinical trials or research, patient engagement is critical. In this webinar, join a panel of experts who will address proven and emerging ways to empower a diverse group of patients as critical stakeholders in clinical trials, leading to improved participation and more meaningful outcomes.

There are more than 2,500 gene-based therapies in the biotech pipeline, many of which are targeted for rare diseases. Clinical trials for these emerging therapies typically target very small patient populations, leading to significant challenges in the identification and enrollment of qualified patient participants. Biotech and pharmaceutical companies routinely reach out to patient advocacy groups, but don’t often know how best to support their efforts, or how to engage a diverse population of patients in the clinical trial development process.

In addition, the patient voice is often restricted to those who have the means to travel to academic research centers. Success in rare disease clinical trial enrollment and retention necessitates expanded access, more inclusive outreach strategies, and technology-driven solutions.

Join Lanya McKittrick - Chair of the Usher Syndrome Coalition and Founder, Hear See Hope Foundation; Steve Smith - President, Patient Advocacy, WCG; and Karmen Trzupek, M.S., CGC, Director of Clinical Trial Services, InformedDNA in a live webinar on Thursday, December 3, 2020 at 1:00PM EST.

For more information, or to register for this event, visit Engaging Diverse Patient Populations in Rare Genetic Disease Clinical Research.

ABOUT XTALKS

Xtalks, powered by Honeycomb Worldwide Inc., is a leading provider of educational webinars to the global life science, food and medical device community. Every year, thousands of industry practitioners (from life science, food and medical device companies, private & academic research institutions, healthcare centers, etc.) turn to Xtalks for access to quality content. Xtalks helps Life Science professionals stay current with industry developments, trends and regulations. Xtalks webinars also provide perspectives on key issues from top industry thought leaders and service providers.

To learn more about Xtalks visit http://xtalks.com
For information about hosting a webinar visit http://xtalks.com/why-host-a-webinar/

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Sydney Perelmutter
Xtalks
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