MCLEAN, Va. (PRWEB) February 25, 2021
As part of its commitment to promote global awareness and research on multiple system atrophy, the MSA Coalition is a Prime Sponsor of the 7th International Congress of Multiple System Atrophy. The Congress will be hosted by the University of Tokyo and will be held virtually February 26 – 27. The International Congress of MSA brings together top researchers, clinicians and pharmaceutical companies to stimulate global collaboration in the urgent search for better diagnostic tools and treatments for MSA.
“The International Congress of MSA is the single most important meeting of MSA researchers and advocacy groups,” said Cynthia Roemer, EdD, Chair, Board of Directors, the MSA Coalition. “The MSA Coalition believes it is critically important to support and collaborate on a global level to improve outcomes for multiple system atrophy patients worldwide. After initiating the first Global MSA Advocacy meeting at the 2018 Congress, we are delighted to again host a meeting with our current charity partners as a means to unify our efforts. The MSA Coalition proudly supports the International Congress of MSA continuing many years of successful partnership.”
The MSA Coalition Board members Cynthia Roemer and Pam Bower will present the session “MSA Advocacy & Research Directions.” The MSA Coalition funds patient-centric collaborative research aimed at alleviating symptoms, slowing disease progression and discovering a cure. In 2020, the MSA Coalition surpassed $2 million in total research funded.
“We are very thankful to the MSA Coalition for its Prime Sponsorship of this Congress, and the University of Tokyo is proud to be the first ever Japanese host of this prestigious event,” said Shoji Tsuji M.D., Ph.D., Professor of Molecular Neurology at the University of Tokyo and President of the 7th International Congress of Multiple System Atrophy. “With virtual presentations by the foremost MSA research experts and top advocates to a global audience of scientists and healthcare professionals, considerable progress can be made towards advancing our understanding of the current state of MSA research. This Congress facilitates the continuing commitment of all participants to work collaboratively on a global scale to advance MSA research, the best hope for making progress against this horrible disorder.”
To learn more about the 7th International Congress of Multiple System Atrophy, visit the Congress website at http://www.congre.co.jp/msac2020/en/index.html.
About the Multiple System Atrophy Coalition
The Multiple System Atrophy (MSA) Coalition is a positive beacon of hope standing up to a little-known, rare, insidious disorder. Since 1989, the MSA Coalition has been devoted to improving the quality of life and building hope for people affected by multiple system atrophy by focusing on a four-pillar mission:
- Providing patients and caregivers with trusted and compassionate emotional support
- Educating patients, care partners and healthcare professionals with credible, critically important and relevant information
- Funding patient-centric collaborative research aimed at alleviating symptoms, slowing disease progression and discovering a cure
- Building a sense of community by connecting and unifying people affected by MSA.
Thousands of participants benefit from the annual MSA Coalition Family Conference, which is live streamed and posted online. With multiple online discussion groups and a dedicated support line, someone is always there to help. As the host of the first-ever Global MSA Advocacy meeting, the MSA Coalition works with other like-minded charities to foster a community of support and care, while also playing an important role in global MSA research efforts.
Learn more at http://www.multiplesystematrophy.org/
About Multiple System Atrophy
Multiple system atrophy, previously known as Shy-Drager Syndrome, is a rare and fatal disorder with less than 15,000 Americans diagnosed at any given time. According to the National Institutes of Health, "Multiple system atrophy is a progressive neurodegenerative disorder characterized by symptoms of autonomic nervous system failure such as fainting spells (neurogenic orthostatic hypotension) and bladder control problems, combined with motor control symptoms such as tremor, rigidity, and loss of balance and muscle coordination." MSA affects both men and women primarily in their 50s. MSA tends to advance rapidly over the course of 6 to 10 years, with progressive loss of motor skills, eventual confinement to bed, and death. There is no cure or remission from the disease.