Part 1: Rare Disease Clinical Research – Spotlight on the Patient and Caregiver, Upcoming Webinar Hosted by Xtalks
TORONTO (PRWEB) February 13, 2020 -- It is important that sponsors leverage different methods of study awareness such as broad-based communications to reach patients. These methods may include sending letters, emails and newsletters to patient advocacy groups’ member databases, and creating websites and social media posts to post study information. Additionally, hosting informational meetings to walk through study participation and providing educational support materials for a greater understanding of the study are useful strategies for recruiting patients.
Once recruited into a clinical study, it then becomes paramount to provide ongoing support and reassurance by focusing on the needs and concerns of the patient and caregivers. This type of tailored support will lead to greater retention on studies, which leads to the collection of needed data for primary endpoints and then ultimately faster therapies to market.
The featured speakers include:
• Miaesha Campbell, Director, Patient Recruitment, Medpace
• Tauna Batiste, Executive Director, BDSRA
• Noreen Murphy, Patient and Family Education Coordinator, BDSRA
Join the live webinar on Thursday, February 27, 2020 at 11am EST (4pm GMT/UK) to learn about:
• How contract research organizations and sponsors can work collaboratively with advocacy groups to raise awareness, train and support patients and caregivers
• Patient-centricity – how to make the buzz word a reality
• Tools and tactics – what works and what doesn’t
• Special considerations for pediatrics and young adults
This webinar is first in a 3-part series on rare disease clinical research:
Part 1: Rare Disease Clinical Research – Spotlight on the Patient and Caregiver
Part 2: Rare Disease Clinical Research – A Deep Dive into Regulatory Strategies & Considerations
Part 3: Rare Disease Clinical Development – Strategies for Ensuring Endpoint Integrity
Margot Rubin, Xtalks, http://www.xtalks.com, +1 (416) 977-6555 x 352, [email protected]
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