The Conference Forum Launches the 1st Dedicated Newsletter to Patients as Partners in Clinical Research

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The Conference Forum is pleased to announce the launch of the Patients as Partners newsletter. This is the first publication dedicated to highlighting the voices that are putting patients at the center of clinical research and making sure patient involvement gets implemented into the medicines development cycle.

“The newsletter highlights the voices of patients, industry and advocacy working to ensure exceptional, safe patient experiences in clinical trials" - Kate Woda, Director, Patients as Partners conference

The Conference Forum is pleased to announce the launch of the Patients as Partners newsletter. This is the first publication dedicated to highlighting the voices that are putting patients at the center of clinical research and making sure patient involvement gets implemented into the medicines development cycle.

The Patients as Partners newsletter builds on the success of the company’s Patients as Partners conference, the first conference in the US guided by patients with Pharma R&D executives and FDA to demonstrate how patient involvement gets implemented throughout the medicines development cycle in order to drive greater efficiencies in getting therapeutics to patients faster.

“The newsletter highlights the voices of patients, industry and advocacy working to ensure exceptional, safe patient experiences in clinical trials,” said Kate Woda, Director, Patients as Partners conference.

The newsletter will cover a wide range of topics from demonstrating how patient involvement gets done, patient input into the design of clinical trials. patient engagement, reducing the burden to find and participate in clinical research for both patients and physicians, and regulatory POVs.

The inaugural issue features interviews from:

Christeen Moburg, Head of Patient Advocacy, Sangamo Therapeutics, tangibly including patient engagement throughout the medicine development cycle;

Chip Bell, PhD, Customer Loyalty Speaker, customer service lessons from outside the industry on how to treat patients like partners even through a pandemic;

Fernando Albertorio, PhD, Advocate for the visually impaired and Hermansky-Pudlak Syndrome communities, and co-founder of Sunu, Inc, discusses advocacy and innovation for Hermansky-Pudlak Syndrome and the visually impaired;

Neena Nizar, EdD, Founder and President of the Jansen’s Foundation, highlights the path to creating a foundation for Jansen’s Metaphyseal Chondrodysplasia and the path of advocacy for other rare diseases;

Tina Aswani Omprakash, writer, patient advocate for the chronically ill and clinical trial participant, talks about the benefits of empowering patients participating in clinical trials.

The issue also includes a write-up of the Patients as Partners advisory meeting, which focused on the challenges the COVID-19 pandemic has created, as well as the opportunities for patient empowerment. The advisory meeting included representation from biopharma and patient advocacy.

In addition to the newsletter, the Conference Forum also produces related podcast series. “With the conferences, podcasts and quarterly newsletter, we aim to provide comprehensive support for patient advocates, R&D executives, the FDA, technologists and service companies dedicated to patient inclusivity and a collaborative approach to medicine development,” said Valerie Bowling, Executive Director at the Conference Forum.

About the Conference Forum:
The Conference Forum is a life science industry research firm that develops conferences primarily around how to get therapeutics to patients faster. They examine and challenge the complex ecosystem of drug development and delivery, bringing ideas together from a variety of sources to help advance clinical research with common goals that are patient-focused.

The Conference Forum presents strategic level conferences, both public and private, as well as developing focus groups and advisory boards for professionals in the life science and healthcare industries. They currently offer conferences for pharma/biotech professionals including R&D leaders, CEOs, business development/licensing, medical affairs/safety, chief patient officers/advocates, clinical innovation champions, investors and drug delivery specialists. The company also publishes six newsletters, reports and produces podcasts.

Learn more about The Conference Forum at theconferenceforum.org.

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BreAnna Bugbee
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