The Dravet Syndrome Foundation Establishes Endowment Fund

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Dravet Syndrome Foundation has established the DSF Endowment Fund to support the foundation's mission by providing an alternative source of funds for current and future use.

DSF wants to assure the future sustainability of the foundation by building the necessary assets that will guarantee long term support of our important mission.

The Dravet Syndrome Foundation (DSF) today announced that it has established the DSF Endowment Fund. The purpose of the Endowment is to support the mission of the Foundation by providing an alternative source of funds for current and future use. The endowment has two primary goals. First, the principal of the endowment’s assets must be preserved in perpetuity; second, the endowment should strive to achieve investment returns sufficient to supplement ongoing Foundation operations. The Foundation endeavors to grow the endowment so that it represents an even larger source of funding for future generations.

The Foundation welcomes those who support DSF’s mission to make donation to the Endowment Fund. Donations to the endowment may be made by contacting DSF's accountant, Jamie Cohen at jamie@dravetfoundation.

Mary Anne Meskis, Executive Director, said, “DSF wants to assure the future sustainability of the foundation by building the necessary assets that will guarantee long term support of our important mission. The establishment of this endowment fund will help to guarantee that DSF can continue to fund research, increase awareness, and support individuals living with Dravet syndrome and their families.”

About Dravet syndrome
Dravet syndrome is a rare and catastrophic form of intractable epilepsy that begins in the first year of life and affects 1:15,700 individuals. Patients suffer from frequent and multiple seizure types, including prolonged seizures, throughout their life. As they age, other health comorbidities arise including developmental delays, sleep difficulties, and gait issues. Patients will never live independently and the quality of life for the patient and family is severely impacted.

About Dravet Syndrome Foundation
Dravet Syndrome Foundation (DSF) is a 501c(3) nonprofit organization whose mission is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families. Since its inception in 2009, DSF has awarded almost $4.6M in research grant awards and over $160K in patient assistance grants.

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Mary Anne Meskis
@curedravet
since: 09/2009
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