“To be a patient advocate is to arm yourself with the latest research, knowledge and resources for the community and so far we’ve been able to touch the lives of millions of people through the 90+ disease specific segments we’ve aired so far” - Carri Levy, Creator of Behind The Mystery
DEERFIELD BEACH, Fla. (PRWEB) September 21, 2020
“Behind the Mystery: Rare and Genetic” (BTM) is a recurring health segment on the national, award-winning morning show, The Balancing Act, that highlights the emotional, scientific and medical aspects of rare and genetic diseases. For the past nine years, BTM has been bringing these often undiagnosed, misdiagnosed and complex medical conditions to the forefront by partnering with pharmaceutical and biotechnology companies who are on a mission to educate the public, leading to earlier diagnosis and treatment. To date, the show has featured over 90 disease states and is an invaluable resource to people suffering from these disorders and the entire rare disease community.
This “Special Edition” of Behind the Mystery: Rare and Genetic will air on September 21st and October 2nd, 2020, on Lifetime TV and will then stream online at: https://thebalancingact.com/rare. Featured rare diseases:
- Friedreich’s Ataxia (FA) - A progressive and debilitating neurological disorder that affects about 1-in-50,000 people in the United States, FA affects the brain, nervous system and the heart. An early genetic diagnosis can help set out a health maintenance plan to improve a patient’s quality of life. In this episode, you will hear from medical expert Susan Perlman, MD (Neurologist, UCLA Medical Center) and meet Frankie, a young woman whose own diagnosis spurred her passion to help others, by becoming an ambassador for Friedreich's Ataxia Research Alliance (FARA) https://curefa.org/. For more information, visit http://www.connectFA.com
- The Leukemia & Lymphoma Society’s Clinical Trial Support Center – In an effort to help patients find clinical trials, overcome barriers to enrollment, and increase awareness and education for patients and caregivers, The Leukemia & Lymphoma Society (LLS), the global leader in the fight to end blood cancers, created the Clinical Trial Support Center (CTSC). Viewer will learn about ongoing treatments for blood cancers from Ajay K. Gopal, MD, FACP (Seattle Cancer Care Alliance Medical Director of Clinical Research, Hematology, Malignancies/Hematology), hear from a patient advocate and T-cell lymphoma fighter, and meet a clinical trial nurse navigator who works closely with patients to educate and find appropriate clinical trials. More information may be found at LLS.ORG/Navigation.
About The Balancing Act: The Balancing Act is a morning show created and produced by BrandStar that offers sensible solutions and essential information in a fun, entertaining format; providing resources to help people do life better. Now in its 19th season, The Balancing Act features everything from delicious recipes, style makeovers and dream getaways to parenting tips and the latest news in health and wealth. Tune in to The Balancing Act weekdays at 7:30 a.m. (ET/PT) on Lifetime®, and find all previously aired episodes on TheBalancingAct.com.