"Glee" Star Max Adler Hosts Charity Gala to Benefit FSH Muscular Dystrophy Research
Boston (PRWEB) September 22, 2015 -- On October 18, 2015, "Glee" star Max Adler will host the Ghostly Gala to Vanish FSHD at the historic and elegant Cicada Club in downtown Los Angeles. The event is open to the public and all net proceeds benefit research and education programs at the FSH Society, an award-winning non-profit and global leader in the quest to treat and cure Facioscapulohumeral Muscular Dystrophy (FSHD).
The Halloween costume ball will feature dinner, big band music, magic, a live auction, and a costume contest judged by Adler and friends. Costumes are optional, but cocktail or vintage attire is requested. Adler, whose family has been directly affected by FSHD, appears in a public service announcement to promote the Ghostly Gala.
To view the PSA created for the event, starring Max Adler, click here.
FSHD, one of the most prevalent types of muscular dystrophy, is a degenerative muscle disease that causes progressive weakness, and may render its sufferers unable to pursue their livelihoods, smile, blink, or even hug their kids.
Adler’s mother and grandmother were among the close to one million men, women, and children who battle the disease. The condition is hereditary and patients face a fifty percent chance of passing it on to each child. “I watched my family try to cope with FSH Muscular Dystrophy, and it broke my heart to see how it changed their lives and the lives of everyone who loved them,” Adler says.
"There are thousands of people in southern California who are affected by FSHD and we’re so grateful to Max and our other advocates in the entertainment industry for using their celebrity to raise awareness” says June Kinoshita, Executive Director of the FSH Society. “This is a watershed moment, when we are embarking on the era of drug discovery. Much greater public visibility and resources are needed now that we are so close to having the first effective treatments for FSHD."
Ghostly Gala Event Details:
• What: FSH Society’s Halloween Costume Ball hosted by Max Adler of "Glee"
• When: Sunday, October 18, 2015; Doors open at 5:00 p.m.
• Where: The Cicada Club at the Historic Oviatt Building, 617 South Olive Street, Los Angeles, California 90014
• For Tickets: Visit this link, call (781)-301-6651, or email fshghostlygala(at)gmail(dot)com
To make a donation online to the FSH Society in support of the LA Gala, please click here. To watch a video with more information about the Ghostly Gala to Vanish FSHD, click here.
About The FSH Society:
The FSH Society, founded in 1991 by two FSHD patients, is a world leader in combating muscular dystrophy. The non-profit has provided millions of dollars in seed grants to pioneering research worldwide, creating an international collaborative network of patients and researchers. The FSH Society seeks to serve as a source of information and support for all patients and families with FSHD; act as a driving force in the development of research directed towards treatments and ultimately a cure; and bring support to patients and research for FSHD through effective engagement of governmental and private sector organizations and entities. For seven consecutive years, the Society has received the Charity Navigator’s four-star rating, the highest distinction held by less than two percent of non-profit organizations in the country. The FSH Society offers a community of support, news and information for FSHD patients and families through its website at http://www.fshsociety.org. For more information about FSHD, please contact the Society at 781-301-6649.
Press Contacts:
June Kinoshita: The FSH Society
781-301-6649; june(dot)kinoshita(at)fshsociety(dot)org
Theresa Masnik: SHIFT Communications
617-779-1871; FSHSociety(at)shiftcomm(dot)com
June Kinoshita, FSH Society, Inc., http://fshsociety.org, +1 (781) 301-6649, [email protected]
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